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CARE Panel: Genomics research with indigenous communities

Panelists Katrina Claw, Division of Biomedical Informatics and Personalized Medicine at the University of Colorado Anschutz Medical Campus; Mathew Anderson, assistant professor in the Department of Microbiology; and Daniel Rivers, director of American Indian Studies and associate professor of history, discuss ethical considerations about conducting genomics research with indigenous communities. 

Recently, genomic research has allowed us to take great strides in predicting disease susceptibility and optimizing treatments. However, Indigenous peoples, including American Indians, Alaska Natives and Native Hawaiians, remain underrepresented and understudied in genetic and clinical health research and so are less likely to benefit from these important advances. Given past violations of research ethics, lack of community engagement and transparency, many members of indigenous communities are unwilling to share personal health information, including DNA, with the research community. How should researchers approach these communities in ways that build trust, foster collaboration, and support equitable outcomes?

For more information, visit the CARE website.

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